Autism

Why you should never tell somebody they are only ‘a little bit autistic’

 

As an autistic female, this is the thing I dread hearing most after disclosing to somebody that I’m autistic. Shockingly, I’ve actually heard this comment from medical professionals (though thankfully only from specialists who aren’t linked to the area).

There are four main reasons why hearing this or anything similar bothers me and plays on my mind repeatedly.

1. You’re completely taking away my social identity in one small sentence.

I realised from a very early age that I didn’t fit in with the other, neurotypical, kids. Whilst many were nice and I had a few good friendships with a couple of the kids in my school, I didn’t fit in with them overall. I hated pretend play and preferred to organise, I didn’t like having anybody near me so any type of contact play or sports were out of the question and I was frequently told that my social behaviour was abnormal. With increasing age I accepted the realisation that I didn’t fit in with most people.

Now I have come to understand that as an autistic adult, I have a very different culture to neurotypical people. I became completely accepting of this when I was diagnosed, when I begun to research in to autism and found that I’m not alone; and that there is not only an explanation for why I never truly fitted in, but that there are people in the exact same situation as me, with ‘norms’ closer to my own than to the general norms of society. Being diagnosed late, however, meant that it took a lot of adjusting before I felt I belonged as an autistic individual. Every time somebody questions the extent of me being autistic I feel like they’re telling me I don’t fit in with that category of people either, that I basically just don’t fit anywhere.

2. Autistic traits are not always visible.

Everybody has good and bad days, everybody can put on a strong persona some days and not on others. From talking to people both autistic and non-autistic people, the difference appears to be in the things that bother us.

The only example I have is myself, on a good day (minimal change in routine/no sudden events etc.) I can leave the house and fake eye contact pretty well (my technique is to look at a less intimidating facial feature), I can manage some convincing social discussions and walk around free of any degree of meltdown. On a bad day if I have a choice I won’t leave the house, I don’t like the reactions I get when I’m having meltdowns or in clear distress, but sometimes staying home isn’t an option (whether it’s work/university/appointments – I don’t like to cancel). On the bad days when I have to leave the house, it becomes quite apparent that I’m autistic. I end up jumping and sometimes shouting at every sudden noise, I am completely unable to make eye contact to the point where I look only at the floor, I avoid conversation and human contact at all costs and on particularly bad days end up having public meltdowns.

Just because a person isn’t seeing autistic traits in me one day doesn’t mean they never will, the longer they know me the more likely they’ll end up seeing my traits. The problem is that once somebody decides I’m ‘not that autistic’ when they later see said traits in full they immediately assume my behaviour is rudeness or erratic behaviour rather than a product of my condition, which they’ve decided I don’t have.

3. It takes a lot to keep autistic traits aside during social interactions.

It’s unfortunately not as simple as I mentioned prior, with everyday fitting ‘good’ or ‘bad’ as much as I’d like that to be the case. Almost every day that I leave home or interact with somebody outside of my close network, it later leads to some sort of heightened trait expression. A lot more things bother me than seem to bother neurotypical people, things like a buzzing light on the bus, having to sit next to another person on public transport, having to remember to fake eye contact/show emotion on my face/respond appropriately in social conversations, dealing with the feel of rain or wind on my skin, and that’s just to name a few. Therefore, most days are taxing and this takes its toll, sometimes I’ll be visibly agitated in public, but more often than not (due to years of practice) I hold in every single thing I’ve had to deal with until I get home. The problem then is that once I get home I will feel exhausted, sometimes be unable to function cognitively, definitely be unable to handle any more human interaction, feel pain at the slightest touch, and often after a day of these factors building up I get home to have a meltdown.

The reason I learnt to hold in until I get home is because mimicking neurotypical traits and social interaction makes parts of life easier, it means that I can somewhat break social communication barriers between me and other people to get by. However, it doesn’t mean I’m cured, it is simply me putting on a role to try and get by in the ‘social world’ and the traits I’m mimicking won’t one day become natural to me. It makes it even more insulting when somebody then puts your diagnosis in to questioning. It feels as though they’re failing to see how much effort you have to put in on a daily basis, and I always feel as though their opinion would change if they saw the after effects of a day outside of home.

4. You’re stereotyping me.

Autism is a complex condition, and no two autistic people are the same. We are still individuals with personality traits amongst our condition. Please don’t assume that you know everything about autism because you have met one autistic individual, our traits and trait expression can vary so widely. Even more importantly, don’t assume you know what it’s like to be autistic because you have seen a very bad fictional depiction of it via the media.

For a long time people didn’t recognise autism as a female condition, at present we are still less common than males. We are under-diagnosed, misunderstood and for those of us who do get a diagnosis it’s often much later in life. Therefore, understand that autistic traits you may have heard of frequently have been coined from populations where autistic females are largely underrepresented. It is increasingly gaining understanding that us females, from a very young age, learn to mimic. We tend to start out by mimicking entire behaviours regardless of context, sometimes even the accent/mannerisms/style of a person, and as we get older we learn to extract the smaller behaviours and the contextual rules that come with them. But again, just because we have became experts at mimicking, the behaviours we show won’t be natural to us, it does not mean our autism is gone or lesser than it was.

I therefore wish people would keep a few things in mind: the person you meet with autism is probably not going to meet the preconception you hold, people with different forms of autism will express their traits in completely different ways, autism can be hard to detect in females and lastly you are (assumingly) not a Psychiatrist, please consider your words and their impact before you minimalise or take away someone’s diagnosis.

 

 

 

 

6 thoughts on “Why you should never tell somebody they are only ‘a little bit autistic’

  1. Thank you for sharing! I can relate to so much of this. Personally, this is why I go for ‘I’m autistic’ rather than Asperger’s/HFA, so that NTs don’t get high hopes about not having to make adjustments for me (especially at work), and I am finding extremely hard to ‘pass’ as NT at the present time. But that is my decision and I respect yours 😊 Looking forward to future posts!

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    1. Thank you for your comment 🙂 it seems to be something that happens a lot, people get fooled by the ‘functioning’ and then don’t recognise we also have days were we can barely function. I’m always shocked when people undermine my diagnosis because I don’t feel I pass for NT either I’m very aware of all my differences and the awkwardness when I communicate. The reason I personally tailor my traits around NT people is to communicate and build connections, I don’t think it’d be as easy for them if I didn’t try so it’s saddening when people become rude about the diagnosis. Thanks again for the feedback :)!

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  2. I believe most NTs are incapable of viewing people outside of what they consider their key demographic without using stereotypes. They do it for race, religion, autism, and to an increasing degree politics. If a person doesn’t fit into the stereotype the NT believes is true then they don’t challenge their stereotype but declaim the person false (not a real black man, Muslim, Christian, Aspie, lesbian, Democrat, etc…).
    I use the word incapable on purpose. As their are thugs we with Asperger’s cannot do I think seeing people objectively as individuals is something neurotypical cannot do.

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  3. Thanks for so clearly laying out how it feels to have someone suggest you “don’t have it that bad” or my favorite “but I can’t even tell!” It denies my struggle like when wheelchair-bound people are condescendingly called “handi-capable” or even when hipsters wear eyeglasses with non-prescription lenses! On the other hand it does let me know how well I’m camouflaging my symptoms. They just don’t understand that I had to work diligently to put myself forward in the social world well enough to be convincingly normal. Keep keepin’ it 100%, like we say in America!

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